Batten disease also known as the neuronal ceroid lipofuscinoses (NCL’s), are a group of rare inherited neurodegenerative disorders.
Who is the service for?
Children with suspected battens disease who need expert input in diagnosis and in meeting their health needs and care
Criteria for access to service
Child with suspected or diagnosed IMD needing diagnostics and or support
Accessibility of this service
Our building is fully accessible
How this is provided:
We carry out tests to diagnose patients and provide expert support in the management of batten disease
How can I access this service?
We accept referrals from GP’s, paediatricians and paediatric neurologists, all local children’s services should be aware of and support the referral.
We accept written referrals by post or email to the contacts below:
Batten disease service
Children's Neurosciences Centre (Newcomen Centre)
1st floor, South Wing
St Thomas' Hospital
Westminster Bridge Road
London SE1 7EH
How is this service funded?
The service is commissioned by health
Do you need to pay for this service?