Sickle Cell & Thalassaemia Community Services

Type of service provided:

Genetic counselling for antenatal couples at risk of having a child with a major haemoglobin disorder.
Support for parents with a newborn baby with sickle cell or thalassaemia.
Ongoing education and support for parents and families.
Support to children and families in managing their conditions, school care plans, social and welfare support.

Age Range:

From Birth to 18years

The Service:

We provide services for adults, young people and children with sickle cell disease and thalassaemia and their families.
Our team provides a specialist nursing service to the residents of Lambeth, Southwark and Lewisham, who are at risk of having, or already have an unusual haemoglobin type.
We also provide the same service to families and carers who are affected by sickle cell disease and thalassaemia.
We're based in the community, but when you have to visit the hospital, we will work closely with the hospital-based sickle cell service to make sure you receive the the best care.
We work closely with local and national organisations including the National Sickle Cell and Thalassaemia Screening Programme ( NHS England) Sickle Cell Society and The UK Thalassaemia Society

Who is the service for?

The service is for the residents of Lambeth, Southwark and Lewisham, and is available to provide advice in the Preconception period, Antenatal period, after a baby is born and on going for children & young adults.

Criteria for access to service

Adults with a unusual haemoglobin type, carriers of sickle cell, thalassaemia and those with a major haemoglobin.

Children and young people with a major haemoglobin disorder
Sickle Cell disease / thalassaemia major.

Accessibility of this service

Clients are seen at the Sickle Cell & Thalassaemia Centre, in their home, local health centres or hospitals.

How this is provided:

Face to face counselling, telephone or via email.

How can I access this service?

You can refer yourself or child to our service: Tel: 0203 049 5993


Or you may be referred by other healthcare professionals, or a screening programme, such as the NHS Sickle Cell and Thalassaemia Programme

Do you need to pay for this service?

The service is free if you are entitled to free NHS care and are registered
with a GP practice in Lambeth, Southwark or Lewisham..

Confidentiality and Impartiality

All contacts with children and their families are treated in a confidential way as per Trust policy.

Useful to know

The Sickle Cell centre office is open 9am – 5pm Monday- Friday
The office is closed on bank holidays. You can either send an email or leave a message on the answer phone and we will contact you on our return. If you visit the centre it is located within the congestion charge zone.

Training provided:

We support parents in the care and management of a child with a major haemoglobin disorder( Sickle Cell anaemia & Thalassaemia major )
We provide training to other health care professionals; Health Visitors, School nurses and Midwives. We also provide training to non-health professionals i.e. schools / colleges and give health promotion talks in the local community to raise awareness.

Drop in service

A Parent peer support group is run.
When :Every last Friday of the month
Where : Mary Sheridan Centre
Time : 10-12noon

Welfare Support drop - in
When : Fourth Friday of the month
Where: Evelina Children’s Hospital ( Dolphin clinic)
Contact : Daniel Nyakutsey on 0203 049 6088 / 5993